The Rare Diseases Clinical Research Network was created to facilitate collaboration among experts in many different types of rare diseases. Our goal is to contribute to the research and treatment of rare diseases by working together to identify biomarkers for disease risk, disease severity and activity, and clinical outcome, while also encouraging development of new approaches to diagnosis, prevention, and treatment.

Rare Diseases Contact Registry

The Patient Contact Registry is a method by which patients with rare diseases can register themselves with the RDN in order to be contacted in the future about clinical research opportunities and updates on the progress of the RDN research projects.

On the Web: www.rarediseasesnetwork.org